Eveyone Please Read For Insight Posted: 02-17-04 12:52pm
I am a 20yr. Old female who has always
had a weak immune system, has had 4 bouts
of kidney stones since I was 12, 2 years
ago had mono and then a human parvovirus
that can give adults polyarthritis for
some months, have a had a cyst on my ovary
and been in mild whiplash injurys
including lots of car wrecks, I also have
had a cyst on my ovary, and seasonal
allergies until recently they are all
seasons and I get shots for them.
I've had symptoms since 2001, where I had
to quit my fulltime job, drop out of
college, and move back in with my parents.
The symptoms include: joint,muscle, soft
tissue,bone,skin,face,and head/skull pain,
swelling, extreme thirst, memory loss, bad
depression/anxiety, irritability,
twitching all over, insomnia, light
sensitivity, numbness and tingling, bad
dreams, diahareah\constipation, raynauds
(sensitivy to cold,heat,causes
purple,red,white,yellow,green/blue skin,
numbness tingling, and pain.) after3 years
of testing blood tests showed this week
parathyroid high, and another thyroid test
high, and i've always had elevated ana,
found in many autoimmune diseases.
The thyroid has 4 parathyroid glands.
These glands regulate calcium in your
blood stream. When 1 or more is
malfunctioning you can either get too much
or too little calcium in your blood. In
my case i'm getting too much so it can
start to take calcium from my bones.
Your not supposed to eat much calcium at
this point. I love cheese!
Even though I have a lot more testing to
do, these results explain 90% of my
symptoms and even why since age 12 i've
and kidney stones and why my immune system
has gone haywire.
It's amazing 3 or probably eight years of
hell and one new docter I saw last week
figures it out so quick.
Other docters had given up, didn't care,
couldn't figure it out, didn't know what
to do with me, called me crazy, thought it
was somatization, thought I only wanted
drugs, and just plain wouldn't listen!
It's all caca now. I was even started
giving up and selfmedicating with alchohal
and marijuana. Ended up in jail for 3
weeks for 2 dui's.
What ever you do listen to your heart not
dumb doctors. There are very few who
actually care or believe young people can
be in chronic pain. Go to as many
doctors as you can, find the right ones!
The good ones are hard to find but they do
exist.
And read this book:
living well with autoimmune disease what
your doctor doesn't tell you.....That you
need to know
mary j. Shomone - who also has a web
site and a thyroid problem herself.
Hope this long book I wrote here helps.
Let me know. Any qestions comments? I'd
like to here them.
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 02-18-04 18:38pm
Have you actually been diagnosed with
lupus? I saw all your symptoms and things
that have happened but I never saw where
you were diagnosed with lupus and your
involvement. What organs are involved?
If not with lupus, what autoimmune
disease?
I, too, have had many, many run-ins with
kidney stones...Aren't they horrible? I
think my last attack (about 3 weeks ago)
was my seventh attack! Ugh!
Also, just a comment, but I thought your
comment on "dumb" doctors was a bit harsh.
Unfortunately, lupus is a disease that is
off the "radar" of most doctors. While it
is unfortunate that most lupus patients
take 3-5 years to be diagnosed, I would
hardly *blame* the doctors. I would,
instead, blame a society that would rather
not hear about people who suffer everyday,
but may not die from their problems. I
speak about this from experience. I, too,
took many years to be diagnosed, but I
have *never* blamed the doctors. Each and
everyone that saw me during the
undiagnosed phase really did try to help
me; they just did not know how.
I look forward to reading the book you
suggested. I am always looking for new
reads on this disease. The disease is so
unknown, and, yet, not rare. It affects
everyone around you and changes your life
radically.
It is nice to meet you and I look forward
to further insight from you.
Hugs,
ladybrannon
