Joined: 11 Apr 2007 Posts: 1 Location: west midlands, uk
Stalevo Posted: 04-12-07 16:14pm
Is anybody on stavelo. I am on miraxpexin
and stalevo, worried about long term side
effects. Aged 47 yrs, diagnosed with PD
in Oct 06, right side affected, stiffness
and tremours, seemed to be controlled with
these meds, side effects such as increased
weight loss, loss of appetite, insomania,
anybody else same or similar.
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salital
New User, Becoming EHEALTHy
Joined: 20 Nov 2007 Posts: 1
Stalevo Posted: 11-20-07 13:38pm
Hi ashoka, I am on the same medication as
you, I am 58 and was diagnosed just after
I was 51. Used to be on sinemet plus, but
when we moved to Crete three months ago I
found out sinemet plus is not available
here. Stalevo seem to work ok but am
now at the stage where the drugs are
wearing off before the next dose is due.
I have lost weight since going onto these
drugs and my apetite changes all the time.
There are side effects with all parkison
drugs I think. I have just seen a
consultant at Heraklion Hospital who gave
me a thorough examination and I now have
to go for an MRI scan and a CT scan also
numerous blood tests. My doses have been
adjusted and hopefully now will have fewer
periods of tremor onset and dyskanesia.
Only just seen your message as have not
had internet access for about four months.
Hope all is going ok with you
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smj3
New User, Becoming EHEALTHy
Joined: 04 Dec 2007 Posts: 3
Stalevo Posted: 12-04-07 09:56am
I have had early onset Parkinsons since I
was in my early 40's. I am now 59 and have
recently had the deep brain stimulator put
in. I take stalevo and Mirapex. The
surgery had eliminated the dyskanesia
completely and has helped with my
coordination. I hope to be able to come
off Stalevo and Mirapex in the near
future. I still have some walking
difficulty but hope with a few more
adjustments this will be eliminated also.
The surgery was scary but well worth the
outcome.
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csdeleon
New User, Becoming EHEALTHy
Joined: 02 Jan 2008 Posts: 2
Mom Also On Stalev Posted: 01-02-08 20:42pm
It's called Stalev here in the
Philippines. Dr. switched my mom 65/yo on
Stalev after years on Sinemet. She
suffered from stroke in October and we
noticed that the tremors are GONE with
Stalev but so is her mobility. with both
PD and stroke, it is not easy at all. any
suggestions on how we can help mom lose
weight? her loss of mobility requires that
we carry her to be able to move her around
the house and it is such a struggle since
she is very heavy (about 150 lbs i would
think).
