Is This Chron's Disease Desperate For Some Help

I have had a couple of endoscopies, which are a no-sweat kind of procedure here in the US. they sedate you for them. i have heard that they don't sedate people in some other countries for these. you might ask for this. I have Celiac disease, which they thought might be crohn's or ulcerative colitis. I had horrible cramping and the foulest diarrhea in the land. My loving and thoughtful husband used to call me "swamp-butt". Anyway, I went on the gluten free diet and it saved me. I weighed 80 pounds at 5 feet tall and was tired and ill all of the time. now I am healthy and would have a decent amount of energy if it weren't for my two children!

Good luck and let us know how it turned out.

thank you for the reply i was just wondering if you knew anything about chrons and ulcerative colitas and with the celiac disease what symptoms did you get and what treatment did you need? did they tell from the endoscopies that you had celiac disease? please reply thanks for your help so far

An endoscopy can tell whether you have problems in the esophagus, stomach, and the upper part of the small intestine. If you have Celiac disease, it would be apparant on this test. If you have Ulcerative Colitis or Crohn's disease, and your lesions appear in this area, it would be apparant. However, if there are lesions lower in the small or large intestine, then you would need another test to detect them. Usually a barium swallow test is then performed.

Celiac disease has classic symptoms of cramping, bloating, diarrhea, pain, fatigue, weakness, god-awful flatulence, weight loss, and nausea. Other symptoms may include constipation, vomiting, reflux, weight gain. The treatment for Celiac disease is to follow a 100% strict gluten free diet. This is the only treatment necessary. If you do test positive for this, there are some additional tests which need to be performed to rule out some related conditions.

I hope this info is useful to you, and I hope your test goes well.

thank you for that information im really worried i woke up this morning with bad mucus and blood in my stoool someone help im really worried!

hi i was recently addmitted into hospital and was in their for 2 weeks as i was really ill i had a colnoscopy done and the doctor took 7 biopsies he said he could see some inflammation to the colon but when the results come back it come back negative? im really confused. With the celiac disease does it show up on a colonoscopy or would it show up with the camera going down the throat i have found that certain food trigger of my diarrhea so could you give me some information on what i could suggest to the doctor to do next? i would greatly appreciate any replys!

It can't be seen on colonoscopy, only endoscopy. there are blood tests as well.

o ok thanks do you think i should have a endoscopy done? and when they do a full work of blood do the blood tests to show celiac disease included with this?

well, you could ask them to test for celiac with endoscopy. The blood tests that they do are detailed below:

Anti-tissue Transglutaminase Antibody (tTG), IgA: Tissue transglutaminase is an enzyme responsible for crosslinking certain proteins. Although “tissue” is in the name of this autoantibody, it nevertheless involves testing blood and not tissue since the autoantibody is found in the blood. A few laboratories also offer tests to detect IgG anti-tTg.
Anti-Gliadin Antibodies (AGA), IgG and IgA: Gliadin is part of the gluten protein found in wheat (similar proteins are found in rye, barley, and oats). AGA is an autoantibody against the gliadin portion.
Two other tests that are now rarely used:


Anti-Endomysial Antibodies (EMA), IgA: Endomysium is the thin connective tissue layer that covers individual muscle fibers. Anti-Endomysial antibodies are developed in reaction to the ongoing damage to the intestinal lining. It has been found that tTg is the substance detected in this test. Almost 100% of patients with active celiac disease and 70% of patients with dermatitis herpetiformis (another gluten-sensitive condition that causes an itchy, burning, blistering rash on the skin) will have Anti-EMA, IgA antibodies. The test is more difficult to do and interpret properly than anti-tTg.
Anti-Reticulin Antibodies (ARA), IgA: Anti-ARA is not as specific or sensitive as the other autoantibodies. It is found in about 60% of celiac disease patients and about 25% of patients with dermatitis herpetiformis.
Each of the celiac blood tests measures the amount of a particular autoantibody in the blood. For each test, both IgG (Immunoglobulin G) and IgA (Immunoglobulin A) antibodies can be measured; however, few laboratories offer IgG tests other than for gliadin. IgG and IgA are two of the five classes of antibody proteins that the immune system creates in response to a perceived threat.

In general, the IgA antibody is more specific for celiac disease (since IgA is the type of antibody made in the intestine) and is measured almost exclusively. IgG versions may be ordered either to complement the IgA testing and/or ordered because someone has an overall deficiency in IgA. This happens about 2% of the time with celiac disease and can lead to some false negative test results.



There are now genetic tests for Celiac, but most insurances don't cover it.

thanks for the information but my mum phoned the doctor and to mention celiac disease but he said he tested it from the colnoscopy and it come back negative looks like ill just have to stick with this for the rest of my life.

You can't test for celiac with a colonoscopy. The damage done by celiac occurs int he duodenum, and you cannot view that with colonoscopy.

i no thats what i thought!! is the doctor maybe saying that because he dosen't want to do anymore tests! baring in mind im on the nhs maybe w could get tested privatley?

try going to enterolab.com. you can order your own tests. Can you see a different doc and pay out of pocket? not sure how that works there.

i dont understand how a doctor can say they have tested that already and it come back negative when he did a colnoscoy and you can go privatley but its the fact of finding the money if you leave a disease like this for to long can it lead to any long time affects?

There are a lot of long term effects of untreated celiac disease, and some can be devastating. You know, your other option is to do a trial of a strict gluten free diet for 4-6 weeks and see how you feel.

My husband had ulcerative colitis, which has all the same symptoms. He finally had to have a colostomy. If the disease is in the middle of the colon it can be reattached. This is usually the case. The only time it can't be reattached is when is is in the rectal stump. This is why you need to get this taken care of as soon as possible. The longer you wait the more chance there is of it spreading. Get to an gastrointestinal doctor, and keep going until you get results. Don't give up. There is a light at the end of the tunnel. God bless you and keep you sweetie.

I'm sorry to hear that you have this stuff at such a young age, I have been dealing with it for some time now since the age of 7. I'm sorry for you, it is common to be misdiagnosed when you have Crohn's Disease. I was told I had Celiac and spent 10 years without pizza. Anyway hand in there and I will keep you in my prayers