Hi I am 26 years old and 21 weeks pregnant
with my 1st child and have just found out
that my baby has a birth defect - A
Congential Diaphramic hernia which means
that his Lungs are getting squashed by the
stomach which is too high above the
diaphram. I have also been told that there
is nothing that anyone can do and we will
just have to wait and see how it's lungs
work when it is born and it might not
survive after it's born, it just depends.
I am totally distraught, got to try and
get through this wil a positive attitude
but it's hard!! Anyway I was wondering if
anyone else has or knows of anyone who has
had the same thing or has any other info
they could give me as I would really
appreciate it. Thanks.
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ladylee70
Extremely EHEALTHy
Joined: 14 Nov 2006 Posts: 1912 Location: Boise, Idaho,
Thanks: 1
Thanked:0
Posted: 04-17-07 11:38am
I am sorry to here about the dx. It sounds
like a pretty rare condition.
I am just grasping at straws here but I
wonder if there is a specialist somewhere
who does prenatal surgery to correct this.
It probably isn't possible but I am
wondering.
I just can't imagine what you are going
through right now. I would be completely
devastated.
Take care,
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Imhotep1
New User, Becoming EHEALTHy
Joined: 11 Oct 2004 Posts: 5 Location: UK
Diaphramic Hernia Posted: 04-18-07 03:15am
Thanks for your reply, Yea I am very very
devastated, however need to get through
the next 19 weeks without worrying about
it too much, which is hard. My Doctor told
me about Prenatal surgery which has taken
place before and caused the baby to Die,
he said that the best thing to do is just
leave it and hope that the lungs are ok
when it is born. I have heard that taking
steriods can help Lung Development but I
will need to check this one out. Thanks
again, Jenny.
