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ladylee70

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So Tired of This!
Posted: 04-19-07 22:16pm

I am just so tired of my son's gastro problems. I feel so bad for the little man. I am no longer taking him to a regular pediatrician but will be calling pediatric gastoenterologists tomorrow! For over a year, he has been severely constipated. His poop doesn't come out for days and when it does, it comes out like playdo patties. He has needed a few enemas in the doctors office - not a fun thing to go through. One pediatrician said it's because of constipation and because he also holds it in (she was good but we moved three days after we saw her!). His usual pediatrician had given him all sorts of things that do not work. Actually, one does work inconsistantly, Myralax, but he has had diarrhea for over three days now. His diarrhea seems to be getting better but now it seems like he is turning constipated again. He is never just normal!! Due to this problem, he can not be in a regular preschool. He will be four soon and is potty trained to go pee but will grunt for hours to go poo. It is a serious problem. He fears the toilet!!

He hasn't gained a pound in over 8 months...if not longer. I actually think he has lost weight. He is 31 pounds and is 3 years, 8 months. He is starting to become less picky, which is good. He is really on the small, short side as well considering his father is 6'6. I am worried. Come to think of it, he has had gastro problems since he was an infant.

I do think I started to feed him solids a bit to early. I started with rice cereal for a while. I think he was around three months. My mother was pushing it. Some kids may be ready but I don't think he was. Of course, I am going through the "it's my fault" stage right now.

I better get into someone soon. His poop problem seems a lot worse these past few days!! He seems very healthy but his hands also feel very cold a lot. He is an unusually pale child. He did have a lot of respiratory infections when he was younger (RSV to start). Poor little man!!!!! I hope the gastro people can figure this all out. I have tried adding fiber in the diet, tried prune juice mixed with a little apple juice...tried all sorts of things. Some of those work and he changes to diarrhea. I long for him to have a normal "plop" in the toilet!!

That will be a great moment in my life when he is able to have a normal bowel movement and without fear. He is a smart child and when I start work again, I want him to be able to go to a good preschool!! He would thrive in a Montessori, but he can't go right now!! I may have to opt for an in home daycare until we can get this worked out. If he has something medically wrong with him, we can at least enroll him in a public school kindergarten the following year with a 504 plan. They would have to provide for his needs there.
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littlesqueaks

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Location: Caldwell, Idaho

Posted: 04-19-07 22:27pm

Hi Karin, his bowel problems right now could also have something to do with your move. A change can cause a child to have nervous bowels. My youngest had constipation as well when he was little and he too was placed on miralax, it did work for him. Does he like to drink juices and such? I have heard just really pushing the fluids specially water and juices helps. You could also look into maybe a daily dosage of fiber that you can either sprinkle on his food or in a drink, I have heard that there is some that you can't even taste. But if he is a picky eater then it is hard to get them to eat the foods that help with loosening the bowels so they are not so hard. What kind of milk and how much does he drink in a day? Or any kind of dairy?

Have you settled in? Sorry about the cold weather I promise it is not usually like this at this time of the year. How has you husbands job going? Have you been out much to find your self around? Well I hope everything is going well I haven't heard from you yet so I hope all is going well. Take care and PM me and let me know how things are going.

Take care
Heather
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ladylee70

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Posted: 04-20-07 00:19am

He had problems like this since our move from Ohio to WA. He had some problems beforehand but it got really bad when we made our first move. That was 8 months ago. Gosh, I hope he hasn't had nervous bowels for 8 months!! I hope we didn't make it worse by this move!! He does like juices and is starting to love water! He actually has been asking for water over milk lately which is so unusual and great:)
I haven't tried the daily dosage fiber. That is a good idea. He is a dairy kid but we did cut down on the dairy due to his problem. I will try that daily sprinkle!! Any brand suggestions?? The biggest problem for him is that we go from completely constipated to diarrhea. We rarely have a normal bowel movement.

This sounds like such a dumb question but are kids supposed to have poop like ours meaning actual formed stools? Nathan has never really had that. We'll at least not for almost a year. If he did before we moved from Ohio, I don't remember because I wasn't busy analyzing his stools. Well, the few times he had an enema in the past eight months, he had a HUGE poop - pretty scary size. Other than that, it only comes out patty like or it's too loose. I am actually feeling like an incompetent mother because I can get my child to have a normal poop. We get the "treatment" from family and friends who say that he should be pooping in the toilet. People try to give us toileting advice but they don't see that it takes him about five hours of pushing or holding "it" back when he is going through these episodes. They also don't see how hard it is when he is on the other extreme, diarrhea, and he can't hold back anything. He had over 10 poopy diapers yesterday. He had on regular underwear for three hours and had three accidents before we changed him back into his pull ups People just don't understand and it's so completely frustrating. My mom just came here to help us move in and she has stayed with us for a week. She FINALLY understands what we go through. She is now convinced that Nathan needs to see a specialist. At least one family member is on our side!!

The cold weather doesn't bother me because it's usually sunny here!! The past two days, though, did remind me of Western WA state. I love it here!! I haven't seen my child this happy for at least 9 months. He hated WA state. He will always be an Arizona child. He loves the sun and warm weather. At least we currently have one out of the two. Today and yesterday he kept telling me, "Mommy, brrr it's soooo collllddd." He did it all dramatically; my little drama boy!!


I will PM you!


Last edited by ladylee70 on 04-20-07 00:33am; edited 1 time in total
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tinkinpink84

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Posted: 04-20-07 00:25am

hopefully it gets fixed you dont want it to turn into something like encopresis when hes older, u should read up on that as well too sounds almost similar but not quite
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ThriftyGal

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Posted: 04-20-07 00:31am

i obviously don't have any helpful advice, but i read that all and it sounds so frustrating to not be able to help your kid. I hope you find something that works soon! i was considering starting rowan on cereal way earlier than i feel comfortable because she basically seems chronically hungry. this has changed my mind on that, just to be on the safe side. thanks.
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ladylee70

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Posted: 04-20-07 00:42am

Encopresis: I am just so worried about that. He does sound like a prime candidate for possibily developing this problem. He already doesn't seem to feel bowel movements coming. I do think that going to a specialist now is a good idea.

On one website, it stated that "a new sibling" can make it worse due to increased stress. Great. We just moved and we are expecting a child. At least Nathan is much happier here than our old place!

Tanya, just based on the sites that Natalia showed us on digestive systems and my personal experience with my son (albeit just one example), I do think waiting is a good idea. I know every child is different but I am very convinced my child personally wasn't ready for solids. He showed some signs of digestive problems even as an infant. I believe, it's just not worth the risk. I had digestive problems as well and was chronically underweight. I wonder if there is a connection??

Thanks all for your showing concern and support!
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tinkinpink84

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Posted: 04-20-07 00:53am

the good thing is he is seeing a specialist now. because the longer you wait the harder it is. but that in itself of getting him back to normal can take alot of time and effort.
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Kia

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Posted: 04-20-07 02:48am

This will probably offend, but that isn't my intention, this is an outsider view not a criticism.

You yourself come across as a fairly tense person, a slightly nervous disposition. You don't seem relaxed, confident and happy and I think this can have an effect on your son.

If both you and hubby had digestive issues as kids then that is also likely to be a factor in this.

You haven't mentioned it, so maybe I am simply overlooking something you see as a given, but I don't see you saying that you have tried to put him on a normal balanced diet - just that you have tried lots of things.

could you maybe try him on stuff like whole wheat bread, brown rice, fruit and veggies.

it sounds like whatever you give to ease the constipation is given in too high a dose and then causes the diarhea instead.
you don't want him to be dependant on stool softeners and the like anyway.
then because of the diarhea you stop whatever caused it and he goes back the other way - this yo-yoing is bad for you and him.

try giving him a 1/4 dose - just enough to soften stuff up?
pushing to go is bad and caused ruptured veins in the anus. and most people don't "go" everyday, so don't worry if he doesn't.
the norm is about 3-4 times per week on average, some people being as little as once a week, some as much as 2-3 times per day.

what are some typical breakfasts, lunches, dinners and snacks?
what does he drink?
have you tried removing dairy (cow dairy products) completely?
have you tried replacing cow dairy with goats milk? soy milk?
are you vegetarian/does your son eat vegetarian?

I think Tanya has some awesome health food ideas, and maybe it would be worth finding out from her about rooibos (sp?)
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Mommy35

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Posted: 04-20-07 06:04am

Poor little man!!! I personally don't know what is worse, constipation or diarhea. They both are awful, he must be so miserable.

Have you tried adjusting the doses of Miralax? It certainly sounds like it's working, just too well. Maybe lowering the amount of it you give would help some.
They have those prewrapped prunes, that I have heard are actually very very good. Maybe you could try giving them to him to promote natural .B.M's?
At any rate, I'm glad you like your new place.
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michelle1981

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Posted: 04-20-07 07:47am

Poor boy! I know the pain i get into when i'm constipated, i can't even imagine what he goes through Sad
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mamaTT

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Posted: 04-20-07 08:13am

My stepdaughter used to have this problem too. She was on the Miralax for a couple of years, and it gave her really bad diarrhea too. We tried cutting back the recommended dosage, but it didn't seem to stop her diarrhea...no matter how small of a dose she was given. She seen specialist after specialist and no one could really figure out what was going on with her. There were times that she would strain so hard trying to go poo, that she would pass out. Talk about scary!!!!! Shocked We never did find out what was going on with her, the problem just seemed to have corrected itself. She is almost 5 years old now and has no problems. Maybe your sons problem will correct itself soon too. I wish you all the best. I know how frustrating it can be to not know what's going on with your child and feel totally helpless.

You might try a little bit of prune juice. That was one thing we were told to try when she was really constipated.
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ladylee70

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Posted: 04-20-07 10:56am

Thanks everyone for the suggestions! I will try some ideas.

Kia, that actually did offend some but I can completely see what you are saying. What makes you say I don't seem like a happy person?

I can see why people wouldn't want to write forum postings now! I write some forums on my concerns with my son and am called on the carpet as seeming not confident and unhappy!!!! I am posting a lot of things on these forums to congratulate people, to comment on their pictures, etc.....I am usually a happy person, but completely almost in hormonal pregnant tears right now.

I am "usually" a very happy (not now) and confident person!! My son is a very happy young man who is constantly laughing! He has been known in his daycare to be one of the happiest children. I am a very analytical person, which could make you interpret my messages the way you and/or others do. Also, when your child has a serious problem, you do tend to get a little tense...I try not to show that with my son. This is a forum and written language can not replace in person contact. There are so many misunderstandings on these forums and I think a lot of it has to do with not actually hearing peoples intonations and the way they are actually saying what they are writing. In addition, we don't get the luxury of seeing each others nonverbal communication. Nonverbal communication is sometimes much more important than verbal communication. I bet that if all of us got together, some of the people who fight on here may actually get along!!


With that said, for the past week I have been a little uptight because my mom was visiting and I just moved. In addition, I am going through a high risk pregnancy. My son has been having problems long before that.
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ladylee70

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Posted: 04-20-07 11:13am

Wanted to change something...I completely understood where you where going with what you stated Kia, but don't understand how in the heck you interpret my postings the way you do? I understand you are just trying to help but your first statement actually negated the rest of what you had to say for me. Emotions are an interesting thing.
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Kia

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Posted: 04-20-07 11:50am

They are an interesting thing.
And it is also true that I don't know you in person, I know you from your postings on here.
Posting congrats and stuff doesn't make anyone come across as happy or unhappy and no-one is criticising you in anyway.
Yes, you have a high risk pregnancy, etc.

Are you really an outgoing, super confident, the world's your oyster type person? If so I have severely misread you and I can only apologise

I think I only offended because it hit a raw nerve and if that's the case I am truly sorry.

The big thing is - your disposition can have a huge impact on your child.
If you are always worried about him toileting and such then it will become a big deal to him too.
I'm trying to look at the bigger picture.
I'm sorry I don't empathise, but often the empathy point of view doesn't help. Stepping out of the box and looking at the bigger picture from the outside can often reveal stuff we didn't know about ourselves.

It's also not something you be upset about.
I do not have the greatest confidence (heck I'm an agoraphobic, stuck at home, trapped by my own fears - I know something about emotions trust me).

At the end of the day the choice is yours - you can investigate my opinion and see if it does have any impact on your life and if it does then you can choose to act or not, if it doesn't you have lost nothing and ruled something out.
You can choose to ignore my opinions and think I'm a cheeky bint - that's ok too.
You can choose to do whatever you want because in this case - you're the mommy.
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ladylee70

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Posted: 04-20-07 12:30pm

Thanks Kia for your last posting.

I do agree with the point of how disposition can have a huge impact on a child. I have seen it at my work much too often and even at home with my son when I am in a certain mood or very stressed.

I am a happy person, so I don't think that has anything to do with it. I am a little bored lately, but generally happy.

The toileting issue has become a big issue in our household and he may sense my concern regarding that, which would most likely even make it worse on him. Poor guy. I actually wouldn't doubt if he picked up our concern. He will sit for ours in various places trying to either poop or hold it back and we have become very anxious. During those times, we put him in a pull up because he sitting on a toilet for hours doesn't cut it. He grunts so much that he seems like he is going to pass out. Yeah...we have become pretty anxious regarding this and it is probably obvious to him.

I do suffer from anxiety and I truly hope that my son doesn't pick up on it!!

I have a doctor's appt with a specialist on May 2nd. I hope I get more answers at that time. The nurse that I spoke with has more concern over his lack of weight gain. I looked back at some of his notes and he hasn't gained a pound for year!! Perhaps we will find out that is normal. I have no idea.
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Kia

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Posted: 04-20-07 13:00pm

well, good luck.
I hope they either find something and have a cure for it, or that he does simply out grow it, like someone else mentioned. Smile
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vanessalouanne

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Posted: 04-20-07 17:23pm

Karin you are a typical worried mom. nate has obviously had these problems from infancy and i agree with finding a specialist and trying some of the diet tips others have posted. it shows what a wonderful mother you are by being so concerned. I have found you nothing but sweet and supportive. hang in there girl.. i know what hormones can do to you..take that along with a high risk pregnancy and a move and i think your coping wonderfully Smile
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