Endometriosis- I Need a Cure Posted: 02-22-04 03:33am
Hi everyone, my name is amanda. I was
diagnosed with endometriosis 4 years ago.
Since then ive had four laparoscopy's to
try and get rid of it. Personally I think
that im getting worse, im in constant
pain. I was wondering if anyone had a
miracle cure or even any suggestions on
how I can elevate this pain, preferably a
herbal remedy.
Thanx
|
2ferano
Extremely EHEALTHy
Joined: 23 Dec 2003 Posts: 3717
Posted: 02-22-04 05:58am
I wish I could help you. I am putting
off laproscopy because there is such a
50/50 chance of it helping. Birth
control is suppose to help with the
inflammation and cysts. It does help me,
but I have mild symptoms. A hysterectomy
is probably your best chance, but then
there are so many other symptoms you can
get from that. Hormonal and such. But
if you do find something that helps you,
which I hope you do, please let us know!
|
lee
Experienced User , Rather EHEALTHy
Joined: 15 Aug 2003 Posts: 122 Location: canada
Posted: 03-04-04 03:22am
Hi i'm lee I was recently told by my
doctor that I have endometriosis and I am
going in for a laparoscopy in april my
first one, I have had endometriosis for
probably 2 years that just went untreated.
I have never heard of anyone just having
one surgery for this no matter how small
the endometriosis is, it kindof worries me
a little bit I have been trying for a long
time to get pregnant but am still
unsuccesful, so I dont want to have to
wait through 4 surgerys and 3 years to
have a baby. When did you have your first
laparoscopy? And how far apart were they
and how did you know you still had it?
Sorry to ask so many questions but it
would help me a great deal. I dont want
to start having children until I can deal
with myself first and understand
everything.
Thankx lee
|
manty
New User, Becoming EHEALTHy
Joined: 22 Feb 2004 Posts: 4 Location: nsw
Posted: 03-09-04 19:09pm
Hi lee. I think I had endometriosis for
about 2 years as well before I was finally
diagnosed at 19 yrs. My 1st op was oct
00, 2nd was july 01, 3rd was june 02 and
my 4th was dec 03. My doctor is not very
impressed that ive had so many in such a
short time, but my symptoms were awful
afterwards, that we decided that I would
have to. I dont want to scare you as im
sure everyone isnt the same ( one of my
friends had one and she was fine
afterwards). My doctor keeps telling me
to have a baby, he has since I first
walked through his door, but im only 23
and not in a stable realtionship to be
even considering it.I knew that I still
had it due to the pain level, I actually
regret having so many op's, I dont think
that its helped at all as the symptoms are
still there, I think worse than before.But
I think that having it may help you try
and get pregnant, as they will be able to
see where it is actually growing and
remove it.I know of two people that had to
have their operation before doing ivf
treatment-one because her case of endo is
so bad, the other because they both have
fertility problems. Im sure that there
are differing opinions on the matter- but
im sure that you will be fine. Good luck
with both the op and getting pregnant. If
you want to ask any more questions feel
free, I hope that I was of some help to
you.
Amanda
|
2ferano
Extremely EHEALTHy
Joined: 23 Dec 2003 Posts: 3717
Posted: 03-22-04 12:55pm
Yes, if you are trying to get pregnant,
then I would definately get the
laproscopic surgery. But if you are not
and can deal with the pain, then I would
definately wait. My friend was 24 when
she finally had to have hysterectomy after
four or five surgeries. Each one made
her worse. She had two baby girls at a
very young age and thank god for that,
because she miscarried what would have
been her third child and had to have a
hysterectomy. This is why I am putting
off surgery. I would rather live with
pain every day of my life and know that I
may be able to have kids someday, then get
surgery now and risk not being able to
have enough surgeries to get pregnant. (
I dont think that made sense, but I know
what I meant) good luck girls!
|
CheekyMonkey
New User, Becoming EHEALTHy
Joined: 29 Jun 2004 Posts: 34 Location: Ontario, Canada
Posted: 07-05-04 14:53pm
Surgery is not the only treatment option
for endometriosis.
Medications like danazol, for example,
that cause a "forced menopause" can be a
very effective non-invasive remedy, as
well.
Simply put, they cause the periods to stop
which in turn causes the lesions to
shrink.
On a personal note, I had four
laparoscopies-with minimal success each
time-but after a nine-month course of
danazol, 10 years ago, i've never required
further treatment.
I still have mild endo (a recent lap
confirms this) but it's not even close to
the life altering, painful condition I
suffered with for years.
Hope this helps.
As far as herbs go, false unicorn root and
chasteberry (vitex) are supposedly very
good for treating endo, as well.
