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effinlizzy

New User, Becoming EHEALTHy
Joined: 15 Jun 2007
Posts: 2
Location: oklahoma
Tmj
Posted: 06-15-07 00:49am

I recently started having problems. Mine seem a little different as I have almost no clicking or popping. My only stress is from having tmj. I am a devoted singer, so this sometimes makes it worse. Had braces and a tonsillectomy as an adult. This problem become noticable about a year after having my tonsils removed. Symptoms: mild crackiling noises coming from my neck when I move my head back and forth, pain on lower right side of jaw,and ear pain with stuffiness in ears and pain in area around the joint on the right side. I have been to three dentist. 1st one took the x-rays that go around the head that show jaws and teeth. He was supposed to know about TMJ or that's what his website said. He said I need jaw surgery and referred me to someone who is limited to treating TMJ and does not take a surgical approach (that doesn't make sense!) The guy I was referred to, took forever and when he finally came in he explained what Tmj was and had me bite down and all that good stuff. He said you have TMJ, and I'm thinking "No!!! That cost me 180. The xrays and splint would be about 2100. I did not continue with him as this doctor has been complained about by several people. 3rd guy, Lvi trained did not charge for the visit, he talked with me about my symptoms, had me move my jaw foward noticing a space between upper and lower teeth. he said I needed full reconstuction after a the splint treatment. Cost about 40,000! He showed me a pic of teeth not treated, was this a scare tactic? 4th guy, he is making me a nightguard for about 300. Hope it works. Do any of these people know what they are doing? Depressed and hopeless!
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catswold

Supporter
Joined: 10 Oct 2005
Posts: 404
Location: Flint, Michigan

Posted: 06-15-07 08:16am

You have just shared with us the most frustrating problem, next to the pain, about TMJ - the medical specialists themselves (in my opinion). Sometimes I wish that all these "specialists" would experience true TMJ for a few months to understand the complexity and devastation of the symptoms of TMJ.

Did none of them give you self-help techniques? Personally I believe that we can often help ourselves the best by taking supplements like magnesium, etc., life-style changes, posture corrections, watching what and how we eat, getting better sleep at night, etc., not talking so much & fast, using moist heat to relax muscles, and ice to numb the pain and/or reduce any swelling. Going to a good TMJ trained physical therapist can teach us how to do certain exercises and get those muscles to relax with ultrasound, massage, TENS, etc.

Yes, often we do need professional help if there is a structural problem, bite issues and/or trauma. My opinion is that the specialist's first concern should be to reduce pain as much as possible, and then evaluate how to correct the problem, if possible, and preferably without doing anything too major like surgery.

A bite splint tends to be a good, safe treatment option as it is usually reversible. Clenching and/or grinding our teeth while sleeping is a very common problem. Our bodies usually do adjust but we add stress, bad posture, trauma, a dentist who kept our mouth open too wide for too long, and a bad bite - we have problems. A splint can take pressure off of the joints and/or start to correct the bite issues. Once that happens, often the muscles will stop their spasms and pain will reduce.

Of course there are always exceptions, sadly. The disc might not return to a good position in the joint, the body just will not relax as needed, and/or there may be a major structural issue. I still believe it can be "fixed" or managed with conservative methods, which might mean adding medications, regular massage therapy, psycho therapy, etc. Filing one little tooth might resolve the problem also amazingly, but here you have to be careful. This is not reversible and should be done after the pain is controlled. Very little filing also should be the goal. If a lot of filing is needed, then braces or crowns, etc., might be better.

I think that the 4th dentist you consulted might be the better way to start. A bite splint is a known helper. I also hope, tho, that he mentioned other self-help methods, pain medications or physical/massage therapy. If not, ask him. Is relieving your pain (or function problem if that's your major issue) his first step? Do all the research you possibly can and visit Internet health boards/forums/chat rooms/support sites for contact with other TMJ sufferers and the wonderful support they can give.

Sorry for the length of this and I didn't even put everything in that I wanted, but I am truly hoping and praying that something I said will help you figure out what to do. Don't let these "specialists" frustrate you as that will just add stress to you. You fight for the help you need. Please take care and...

God bless you,
Carol
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Ess

New User, Becoming EHEALTHy
Joined: 12 Jun 2007
Posts: 13
Location: Vancouver, BC

Posted: 06-15-07 16:20pm

EL,

Please try not to be depressed and hopeless. Perhaps you will be one of the lucky ones, with the right condition, the right specialist, and the right treatment, there are many, many people who get better! Try to think positively. For one reason, despression & anxiety is also hard on your health, and you don't need any more problems right now.

As hard as it seems, maybe take a short break from the singing. You can keep humming, to keep the larnyx in shape....

catswold, just wondering, because I cannot find it in your posts - you seem to have found the answer for yourself. Did you have an MRI that showed displaced discs, and if so were they reducing or non reducing? Or was your problem more of a muscular nature?

Ess
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effinlizzy

New User, Becoming EHEALTHy
Joined: 15 Jun 2007
Posts: 2
Location: oklahoma

Posted: 06-15-07 16:22pm

I have done research, just not satisifed. I just don't want to resort to taking drugs, and spending$$$$? to find the cure. I am very tired mentally and think most doctors guess whats wrong before taking any xrays. I found a guy in michigan but I live in Oklahoma. He uses many different ways to find out whats wrong and when he does Guarentee 95% pain relief or money back! He also works with other doctors to help with the healing if needed. I am almost tempted to take a flight out there. , . Why can't I find someone like that here. By the way I am a singer and still have shows coming up. I don't know how I'll make it. This is most devastating to my career. I just wanna be pain free and sing:( It even hurts to cry.....
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Tmddyan

Moderator
Joined: 13 Jun 2006
Posts: 4439
Location: post falls, id usa
Thanks: 102
Thanked:68
Hi
Posted: 06-17-07 17:12pm

I can help you find a doctor in your area---if you want my help let me know.
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catswold

Supporter
Joined: 10 Oct 2005
Posts: 404
Location: Flint, Michigan

Posted: 06-20-07 09:09am

Hi Ess,
Sorry for my delay to your question. Yes, I have had MRI's and other images. I don't have a disc on one side and the other is non-reducing. I have severe degenerative changes in both joints. I just found out that last statement yesterday, but I really already knew before they did the CT scan (scan was for a tinnitus problem). All that popping over too many years, sadly. But I can't complain - God has truly blessed me with the right combination of self-help and other treatments, and medications. I can always "feel" my jaw. There's always a pressure there, like someone putting a finger on my joints and a big rubber band partially around my head, but I rarely have pain flare-ups. I have to do my part, tho, by watching my stress level and sitting correctly in front of the computer. It's getting easier.

God bless...
Carol
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