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Thegunslinger40

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First Post *please Help*
Posted: 06-27-07 14:36pm

Well...Where do I get started. I am posting here to try and find help, or a solution to a problem that has been constant for almost 10 months. I am sure that I can trace the initial complications back for about another year, however the pain that I feel now has been constant for about 10 months.
I have lower back pain. Like millions of other Americans, this pain persists and at times is quite unbearable. I consider myself to have a high pain threshold. Having lived through a number of broken bones, car wrecks, mountain bike crashes and the usual "guy stuff" I know what pain feels like and can deal with it. I am 6'5" and weigh 230. I am in great physical shape and exercise daily with a combination of weight lifting, cardio and flexibility regimens. Well, I used to exercise daily but since the back pain has become more severe, I have not been keeping up with my workouts. Let me describe the pain to the best of my ability.
It is centered in the lower back just above the pelvic bone. It continues down to the right of the spine into my right buttock area, however still close to the spine. It does not feel like it reaches into any area of the glue muscle. It continues up my spine for about 6 inches from the top of the pelvic bone. At its worst, it covers the area of a standard frisbee and I have trouble walking, standing up straight and doing anything that involves motion. At its best, I feel a sharp pain on my spine and just to the right of it. Sometimes it works over to the left side but not always. It is usually a sharp pain, no burning or tingling in the legs. Sometimes when I move, it feels like someone is stabbing me with a bayonet, a large jagged bayonet for lack of a better description.
I have seen 4 different doctors. My general practitioner, an orthopedic surgeon and two "pain specialists." I have had more x-rays than I care to count and two MRI's. Out of the 4 doctors, I have been given 4 different diagnoses. One being athritis, one being nerve issues and another being muscular. The fourth being the one that floored me, "I am making it up." I can assure any and everyone that I am not making this up.
My personal doctor has prescribed me Vicodin and Percocet. The former not really having much effect and the latter helping a bit more. The Ortho tried giving me T3 and stated he does not prescribe anything stronger than that. One pain "specialist" asked what I had been taking. I explained to him that I had been prescribed Percocet 7.5/325 and they were really not helping very much when I needed them. At this point, I was taking 1-2 every 4-6 hrs as prescribed. He stated, "If they aren't working, just flush them down the toilet as you shouldn't have them around your house." The other pain "specialist" somehow came to his own conclusion, without looking at any x-rays or MRI film, that I needed a series of facet block injections.
Please help me and give me any of your experiences or opinions. Is this how doctors treat everyone? Am I the only one out there with back pain. Are there other types of medications that last longer then just a few hours. I am kind of worried about taking all that Acetaminophen for long periods of time. I have been sleeping 2-3 hours a night now. I can't get comfortable and the pain meds wear off before I can get a good nights sleep.
Where should I go from here?
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lonestarguy

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Posted: 06-27-07 19:01pm

Dude....let me just assure you that you are not crazy. This is the modus operandi for doctors treating back pain. Because everyone has different types of pain for different reasons, they have trouble diagnosing it.

I have been diagnosed with degenerative disc disease for the past 7 yrs and have been through almost every procedure and pain med you can name. Some worked, most didn't and almost none are long-term solutions.

Because of the location of my bad discs, surgery would not help me. So I am presently trying acupuncture and massage as pain management.

My guess is that you will go through a lot of the pain management steps before they even start talking about surgery. It's a little disturbing that one of the docs wanted to give you a facet injection without looking at an mri.

My recommendation is to pick one of your present docs or find a new one who can sympathize with your pain. Only a few people even know the level of pain you are feeling and almost none are docs so don't expect them to empathize.

As far as the pain meds go, percocet is a starter just above tylenol but if it works for you, stick with it. The next step is the major leagues--vicodin, norco, oxycontin, morphine, etc. The heavy drugs do work but you have to be careful because they are easy to develop a dependence on them. I just got off a four-year drug high and hope to never repeat it.

You are right to worry about the long-term effects of drugs. The side effects are very detrimental to your future health (another reason to look for something else). As for sleeping, I now take soma to relax me and tylenol pm with some hangover effects in the morning.

For the immediate future, I think you should find the right doc, and consider epidural nerve blocks, facet blocks, etc. Also if you find that nerve damage is a reason for your pain, check on taking Lyrica, a non-narcotic nerve pain reliever.

You never said your age but as you grow older your spine compresses as does the space between the discs and the discs harden and start to encroach on the nerves. This is my problem and will probably never get any better until they can replace several of my discs.

I realize that exercise is not a pleasing thing right now but you will find out that you need to keep your stomach muscles strong to support your back. It goes without saying that you need to be especially careful about lifting and always pay attention that you don't do any more damage.

I hope things work out for you and let us know how things are going
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danasummerville

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Posted: 07-16-07 18:09pm

I have similar problems! I just refuse to take many pain relievers b/c my father became addicted to pain meds at my age (32) b/c of a back injury that resulted in 3 surgeries. I had full body bone scans, X-rays, a partial hysterectomy, CT scans, ultrasounds and no one can find the source of my pain. Like you said...they all wanted to give me a prescription that MIGHT help. Now, I see my chiropractor regularly and it seems to help more than anything. I will not have surgery or allow myself to believe that I have to become dependent upon a pill to get me through the day due to pain!! Hope you get some relief b/c I know how you feel!
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sillyakchick

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Posted: 07-17-07 13:16pm

You have a problem there, no doubt. Injections really might help you, as they decrease the inflammation surrounding the nerve roots and spinal cord. As for long-lasting pain medications go, Durgesic patches would be the only thing I could think of that might deliver a more constant supply of pain medication. Many physicians do not like to order these, with worries of adiction and overdose. However, these medications do not fix the problem. they just mask the pain. I am not sure of your age, but I am guessing that you are young enough not to want to live the rest of your life this way. If it were me, I would opt for injections, then an intensive physical therapy program. The other thing you might consider is finding an osteopathic physician who does manipulation therapy. Good luck.
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comalhk414

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Fusion?
Posted: 07-26-07 22:16pm

I am currently in the process of deciding if fusion is the answer for me. I have been out of work for over a year now and suffer bouts of pain in my lower back, numbess, tingling and pain in left lower leg and foot.
The pain comes and goes. At times I can have days pain free and then BAM! I was active before ddd.
I had a broken tail bone in a training exercise in 99 and x-rays were detroyed before the onset of ddd, but wish I could connect the two.
Ive had physical therapy that just seem to make me feel worse later that night. I have had two injections which greatly helped with right leg pain but nothing else. The lower back pain has me scared to bend over most days. I have read so many horror stories about fusion, my doc says 70% success rate in getting back to work although I doubt returning to patrol is part of that success. He says the disc will continue to erode until I am 50 or so and there is nothing left between the vertebrae. I am 42 and not looking foward to surgery and honestly not looking foward to the back pain to come if I do nothing. I have begun swimming on a regular basis but honestly the other day even that hurt. I dont know about the pain meds I have taken nothing more then hydrocodone/loritab and vicodin and those I only take when absolutely needed because I fear the addiction that I have seen in others in my line of work. Is the surgery worth it or stay on disability or will the surgery completely disable me, doc says its a possibility although a small one. I dont know where to turn, four docs four different ideas. newest doc is only one to suggest surgery.
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