Children With Cystic Fibrosis Posted: 07-10-07 03:52am
Hi,
I would like to ask a few questions if you
don't mind.
My daughter is 22 months old and in
Mother's Day Out. There is another Mother
there that I have known casually for about
7 years. We were talking yesterday and she
was upset and said that her 2 year old had
just been diagnosed with CF. It was very
upsetting and I was not sure how to react.
Do I ask questions about CF and other
problems that he has been having? Or do I
just listen when she needs to talk? We
live in a very small town and we seem to
run into eachother a few times a week.
I do not want to seem nosey, but I do not
want to be upsetting to her by not talking
to her about it. I do not feel we are
close enough for me to do or say anything
more than I am sorry and a short hug. I
think it is that I am so uncomfortable
with the whole situation. I just have no
idea really what CF is and how it damages
the body. All I know is I think it is a
breathing disorder.
As soon as I finish this post I will do a
search for CF and see what I can find out
there.
How do the parents of a CF baby (no matter
how old) like to be treated. My heart goes
out to this Mom, and I really want to be
there for her, but I just don't know how
to be. As I said before we have a ver
casual relatinshp and it never goes any
further than a "Hello & How are you".
Thanks for any help and advice.
Kim
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woahxx
New User, Becoming EHEALTHy
Joined: 01 Dec 2007 Posts: 4
Posted: 12-01-07 15:40pm
hello.
I'm 15 and i volunteer at my local
children's hospital. Through this my mom
and I became really close with a family
with a girl with CF. The girl, Paige,
passed away about 6 months ago. But when
I was there with her family (before she
passed) I think my mom and her mom would
just talk about about normal things, CF
sometimes. Your friend is probably going
through a very hard time so when she sees
you, she'll probably try to act like
nothing is wrong because she wants a sense
of normallacy restored.
Just let her know you're there for her and
act normal i guess is my advice.
sorry for the sob story.
