Skin Forum - Trichothiodystrophy


Trichothiodystrophy

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Medical Questions

Trichothiodystrophy

do you know what this is?

100%

[ 1 ]

do you know of any children suffering with this illness?

[ 0 ]

Total Votes : 1

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sammyjo2

New User, Becoming EHEALTHy

Joined: 22 Aug 2004
Posts: 2
Location: Ausralia

Trichothiodystrophy Posted: 08-22-04 15:56pm


Hi I have a 15 year old boy that has been diagnosed with trichothiodystrophy , I am looking for others with this illness , he is photosenstitive to uv rays and has been in extreme pain for a long time ,www.Vp-it.Com.Au/sammyjoe/ please contact me if you know of any others that are going through similar experiences , we now have a support group as well for ttd and have 40 families with children with this illness.

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